| Paloma Parvex, Genève | President |
| Uyen Huynh-Do, Bern | Past-President |
| Olivier Bonny, Fribourg - Lausanne | Secretary |
| Ruxandra Bachmann-Gagescu, Zürich | Member, representative Genetics |
| Sophie de Seigneux, Genève | Member |
| Daniel Fuster, Bern | Member |
| Britta George, Zürich | Member |
| Patricia Hirt-Minkowski, Basel | Member |
The RARE-KIDNEY network was endorsed and recognized by the KOSEK at the national level! Find more information about the networt RARE-Kidney here.
Case discussions 2026
We are happy to announce the next meetings of the Working Group for Rare and Inherited Kidney Disorders, open to all persons interested. Please, reserve the following dates!
March 11, 2026, 4:00 p.m. – 5:00 p.m. – Meeting number 360 642 064 264 50; access code RS9uU9Hz
May 18, 2026, 4:00 – 5:00 p.m. – Meeting number 334 350 239 273 56; access code Kv9Pg9rH
September 15, 2026, 4:00 p.m. – 5:00 p.m. – Meeting number 399 148 441 077 39; access code sK3Jc9JD
November 24, 2026, 4.00 p.m. – 5 :00 p.m. – Meeting number 382 573 470 976 5; access code VW7cB9V7
You can join and discuss cases with a panel of Swiss experts. If you would like to present/discuss a case, please contact Olivier Bonny (Olivier.Bonny@h-fr.ch) in advance.
Please note that in case of a need for an urgent discussion on the management of complement-mediated kidney diseases, you can send an email any time to Pr Fadi Fakhouri (fadi.fakhouri@chuv.ch) and a virtual meeting will be rapidly arranged for a collegial discussion of the case with the experts able to attend. This may specially apply in case of refusal of an eculizumab treatment or unclear indication as stated in the limitatio of the drug.
Update: 04.02.2026
| Belén Ponte, Genève | President |
| Daniel Ackermann, Bern | Member |
| Norbert Arn, St. Gallen | Member |
| Katarina Benackova, Bern | Member |
| Marco Bonani, Zürich | Member |
| Florian Buchkremer, Aarau | Member |
| Argyrios Georgalis, Chur | Member |
| Markus Mohaupt, Bern | Member |
| Örs Saithy, Schaffhausen | Member |
| Joscha von Rappard, Luzern | Member |
|
Imène Achek Bouajila, Genève
|
Member |
| Linda Berney, Baden | Member |
Update: 05.12.2025
| Aurelia Schnyder , St. Gallen | President |
| Luca Gabutti , Bellinzona | Member |
| Lukas Gerber, Aarau | Member |
| Rebecca Guidotti , Zürich | Member – representative srrqap |
| Ute Helt , Zürich | Member – representative nurses |
| Thomas Hunziker, Affoltern a.A | Member – representative patients |
| Valérie Jotterand-Drepper, Genève | Member |
|
Anne Dufey Teso, Genève
|
Member |
| Hans-Ruedi Räz, Baden | Member |
| Andrea Schäfer, Praz/Vully | Member – representative patients |
| Ann-Kathrin Schwarzkopf , Bern | Member |
| Claudia Studer , Zürich | Member – representative nurses |
| Caroline Wehmeier, Basel | Member |
Update: 10.10.2025
| Specialty | Function |
| Nephrologists | |
| Stephan Segerer, Aarau | President |
| Melanie Ackermann, Neuchatel | Member |
| Spiros Arampatzis, Bern | Member |
| Alf Corsenca, Uster | Member |
| Davide Giunzioni, Lugano | Member |
| Annette Helmuth, Zurich | Member |
| Patricia Mehier, Riviera | Member |
| Menno Pruijm, Lausanne | Member |
| Elena Rho, Zürich | Member |
| Aurelia Schnyder, St. Gallen | Member |
| Curzio Solca, Lugano | Member |
| Patrick Saudan, Genève | Member |
| Nurses | |
| Caroline Bello, Rennaz | Member |
| Marilyne Chiffaut, Rennaz | Member |
| Jean-Sébatien Gabet, Lausanne | Member |
| Quentin Laurent, Lausanne | Member |
| Mareen Novakowski | Member |
| Clotilde Ponsar, Genève | Member |
| Experts | |
| Clementine Bouzat, Gambro | Member |
| Florian Breider, Lausanne | Member |
| Iklim Deniz, Gambro | Member |
| Yannick Ettwiller, Theramed | Member |
| Thomas Gebhart, Fresenius | Member |
| Oliver Martin Du Pan, Genève | Member |
| Patients | |
| Khedider Trabelsi, Lausanne | Member |
Update: 11.12.2024
| Isabelle Binet | President |
| Working group in development |
Update: 16.01.2026