English
Thu, 27 Jul 2017 02:40:56
 
 
 
   
 

WORKING GROUP ON INHERITED KIDNEY DISORDERS

Olivier Devuyst, Zürich President
Paloma Parvex, Genève Vice-President
Daniel Fuster, Bern Secretary
Olivier Bonny, Lausanne Member, representative SSN/SGN
Sophie de Seigneux, Genève Member
Florence Fellmann, Lausanne Member, representative of the geneticists
Guido Laube, Zürich Member, representing Pediatric nephrology
Thomas Neuhaus, Zürich Member, representing Pediatric nephrology
Bruno Vogt, Bern Member

Inherited kidney diseases are involved in up to 20% of patients with end-stage renal disease. These diseases represent a major health challenge requiring  scientific collaboration and exchange. The creation of the Working Group on Inherited Kidney Disorders of the Swiss Society of Nephrology aims: to encourage communication and disseminate knowledge, in whole Switzerland, on the clinical, genetic, mechanistic and social aspects of inherited diseases affecting the kidney; to foster exchange between adult and pediatric nephrologists, geneticists and researchers, actors involved in ethics, health economics, etc...; to address the need for epidemiology data and registries, the necessity for earlier and more efficient diagnosis, as well as improved and affordable care; to share experience with health care providers, patients and their families; and to organize specific meetings, with priority for case discussion and organization in the various regions of Switzerland. 


WORKING GROUP ON NUTRITION, SARCOPENIA & BONE DISEASES

Daniel Teta, Sion and Lausanne President (nephrologist)
Bruno Vogt, Bern Vice-President (nephrologist)
Spyridon Arampatzis, Bern Secretary (nephrologist)
Marco Bonani, Zürich Member (nephrologist)
Christian Bucher, St. Gallen Member (nephrologist)
Lorella Ciutto, Lausanne & Sion Member (renal dietician)
Thomas Ernandez, Genève Member (nephrologist)
Bernd Klien, St. Gallen Member (dialysis nurse)
Theresia Klima, Basel Member (nephrologist)

The aim for this new working group (WG) is to create a platform of interest focused on the management of nutrition, bone disease and sarcopenia in patients affected by chronic kidney disease (CKD). This platform is intended to follow a multidisciplinary approach involving nephrologists, renal dieticians, physiotherapists and renal nurses who all take care of renal patients under different angles. A multi-region representation has been thought.


ARBEITSGRUPPE FREIPRAKTIZIERENDE NEPHROLOGEN

Ann-Kathrin Schwarzkopf, Bern President
Clemens Jäger, Altstätten Member

About 30% of the centers in Switzerland offering dialysis are private institutions.
In addition to patient care, they are themselves responsible for the infrastructure of their centres.
This working group of "Freipraktizierende Nephrologen” within the SGN/SSN was founded to share experiences
and to advise the requests of these smaller units.





Update: 30.12.2016

 
 
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